Saturday, June 16, 2012

I can't believe I started a blog.


I’m Kristen — 20-something, writing/communications/PR gal by day, ballet dancer by night and weekend. I’m also an overachiever, to the point of having 207 bones.

When I first found out I had os trigonum syndrome (a painful impingement caused by an extra bone in my ankle), I poked through dusty little corners of the Internet trying to find information on this condition that, while seemingly common among dancers, is rare among “normal” people — even athletes. (“Did you WebMD it?” a friend asked. I tried, but the search results came back empty. This may be a good thing because in true WebMD fashion, the site probably would have told me I have a freak form of ankle cancer and three days to live.) 

My research turned up plenty of medical journal articles in which I understood about 17% of the words, but very few firsthand accounts of dealing with os trigonum syndrome, having surgery, and recovering. I wanted to read real stories, told by real people, about the ups and downs and when can I ditch the boot and crutches and dance again?

The few resources I did find were tremendously helpful: I enjoyed Ballet Austin dancer Michelle Thompson’s upbeat posts about her surgery and rehab on dance blog The Winger. I also found plenty of insights on Ballet Talk for Dancers, a message board that, incidentally, also helped me find my Cinderella pointe shoes. (Lovely Freed Studio Operas, fear not. This is a temporary hiatus. I will return to you soon.)

So that brings me to this blog, which is at once an attempt to keep friends and family updated throughout my surgery and recovery and to provide information to anyone else — especially dancers — who might land here after browsing the Interwebs like I did. This is also an attempt to keep myself sane while I’m couch-bound and out of ballet. Homegirl doesn’t like sitting still.  

My surgery (more specifically, os trigonum excision and FHL tendon/trigger toe release) is scheduled for Tuesday, June 26. Until then, I’ll post some background info and explain how I got to this point. After surgery, I'll share updates on my recovery and return to ballet. If all goes according to plan, I hope this will be a short-term writing project and that I’ll be back to happy, healthy dancing soon!

91 comments:

  1. Hi all,

    My name is Daniel, and similar to some individuals on this post, I have been diagnosed with Os Trigonum Syndrome a couple months ago. I am a male teenager who rarely is ‘pointing my feet downward.’ Instead, I was a camp counselor and was constantly walking/putting pressure on my feet. After weeks of this agonizing pain, I finally went to see a podiatrist who took x-rays and pointed to the os trigonum bone present in both of my feet/ankles. Since then, I have been receiving steroid injections in my feet, physical therapy/electrical stimulation, heel-pushers/orthotics, and consulting opinions of various medical professionals.
    NOTHING IS WORKING! This is two + months post-diagnosis and I’m scheduled to see an orthopedic surgeon very soon. Surgery is what I want and need to get my pain away. What do y’all think?
    Bye-bye bones!

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    1. Hi, Daniel,

      Thanks for reading my blog and commenting! Sorry to hear you're having trouble with os trigonum syndrome, too. I definitely understand the frustration of not feeling like anything is helping...I went through a year and a half of that before finally getting a proper diagnosis and opting for surgery, which for me was the only thing that totally eliminated my pain.

      That being said, I would exhaust all conservative treatment options first, if you haven't already. You can't undo a surgery, and I do know someone who did not have a positive outcome from it (a dancer who ended up with range-of-motion issues from scar tissue). So it definitely isn't a decision to make without a lot of thought and advice from trusted medical professionals, which I am not, although I'm happy to share my own experiences.

      Wishing you all the best with your appointment and your decision on how to deal with OT syndrome!

      Kristen

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  2. Hi!

    My name is Helen and I'm 14. I used to do a lot of sport especially ballet and I had just got onto points when I had to quit completely :( I had had the pain for years in both ankles but this year got the diagnosis of os trigonom in both feet and am seeing my orthopaedic surgeon again next month to talk about the possibility of surgery. I've had it so long they don't appear to be considering any other treatment options and because it's it both feet I just need them to get on with it! This is really great to see that other people actually have the same problem because a lot of people at my new school just think I'm shirking out of PE! Just wondering how soon after the op you could go exercise again? I really want to be able to do my Duke of Edinburgh next year so am getting rather impatient! Has the operation really stopped the pain?

    THANKYOU for this blog so I know i'm not alone :D

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    1. Hi, Helen,

      Thank you for reading and leaving a comment! I was cleared to swim for exercise 2 weeks after the surgery, once my stitches were out, and I got the OK to do the stationary bike even before then. In the weeks after that, I was allowed to do the stairstepper machine and then the elliptical as long as I didn't have any pain. That really helped in keeping up my stamina and making me feel I was accomplishing something, even before I could go back to dancing. As for the pain, yes, for me the surgery resulted in 100% relief of pain. I'm sure that isn't true for everyone, but I'm incredibly glad I went through with it.

      Good luck with your upcoming appointment, and if you have any other questions, please feel free to ask!

      Kristen

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    2. That's encouraging thank you! :) Helen

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  3. It's good that you researched about your condition. And it's also great that you've found a support system online. Knowing what to expect, especially when there's surgery involved, will help you adjust physically, mentally, and emotionally. I do hope that you have good communication with your physician, so you can say your concerns freely. Hope you're feeling better today!

    Tyrone @USHealthWorks.com

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    1. Thank you for reading and commenting! It's been around 16 months since my surgery, and I'm happy to say that thanks to my surgeon and wonderful PT, my ankle is 100% pain free these days. :)
      Kristen

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  4. Kristen,

    I'm lying here recoverying from my oso surgery 2 days ago. The Dr. Had to repair a frayed tendon also. Were your tendons ok?

    Thanks for doing this blog.

    Hannah

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    1. Hi, Hannah,

      Thanks for reading and leaving a comment! I hope you're hanging in there - the first few days after any surgery, I think, are really rough. To answer your question, my surgeon had to release my FHL tendon and repair a 2-inch-long tear in it, so I definitely had tendon involvement. If you have any questions about it, please let me know, and best wishes for your recovery!

      Kristen

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  5. Hi, I'm Liz and I'm 16. I've had pain from the is trigonum bone since March, and recently decided to go through with surgery. It's a strange question but I was curious how long it was before you didn't feel... Loopy. It's two days before Christmas that the surgery is taking place and I'm worried about being an idiot still by then...

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    1. Hi, Liz,

      Thanks for reading my blog! I'm glad you found it and hope it's helpful to you throughout your recovery. To answer your question, I know pain meds and anesthesia affect everyone differently, but I was not loopy at all after surgery - I owe a big thanks to my anesthesiologist because I felt very alert and clear-headed when I woke up. The pain meds did make me tired, but not "loopy." I did discontinue them after a couple of days because they made me sick to my stomach, and I could keep the pain under control with just Aleve. (My Cryo Cuff really helped, too, with drug-free pain relief!)

      I hope this helps and wish you all the best with your surgery!

      Kristen

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    2. Hi, I'm scheduled for os trigonum removal 2 days after Christmas and had a few questions. How long were you able to walk after surgery? Also were you put under general anesthesia or local along with other drugs?
      Thanks!!

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    3. Hi Alex, I was off crutches completely 11 days after my surgery. I had a nerve block with IV sedation, or "monitored anesthesia care." Apparently people sometimes have memories of the procedure with this kind of anesthesia, but I was totally out and didn't have any awareness or anything during surgery. Hope this helps, and good luck with your surgery! Thanks for stopping by my blog and commenting.

      Kristen

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  6. Thank you for your blog. My 12 year old ballet dancer daughter is heartbroken to be missing her winter performances and being kept off Pointe all year. We finally found an experienced doctor who has worked w/ ballet companies for 31 years. He found that she did, indeed, have Os trigonum. Her last doctor misdiagnosed her since Sept. w/ other ailments incld. a fracture where she was in a cast for 2 months. Now, we're frustrated trying to get the insurance co. to cooperate so we can afford to schedule her surgery in Seattle. We, too, have had to do a lot of driving since this doctor is 300 mi away. Your blog made me feel better when I found it last night. This has been a lonely island in which most doctors know not how to rescue us. Jo, Spokane, WA.

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    1. Hi, Jo,

      Thanks for stopping by and commenting! I'm so glad you found my blog. I'm happy to hear it's been helpful to you and hope it continues to be so during your and your daughter's process of seeking treatment. Please let me know if you ever have questions - I'd be glad to help any way I can!

      Kristen

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  7. Hi from Istanbul,
    First thank you for this blog.It is very helpful. I have os trigonun syndrom in my two ankle. My doc says that operation can be done at the same time for both two ankle. When i saw your photos i think that that is not a good idea because i need a leg to walk :) I think you had a open operation, mine will be a Endoscopic excision. Maybe the pain will be less. So i need your experienced commet. Thank you alot.

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    1. Hi, Onder,
      Thanks for reading! I'm glad my blog has been helpful to you and wish you the best with your surgery and recovery!
      Kristen

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  8. Hello I am Avi
    Male 16
    I first suffered from an ankle sprain, then when I came back after recovering I could feel some pain while shooting the football. I suffered from this pain for about 2years approx . And then after imaging in MRI it was diagnosed as os trigonum. Please tell how to cure it and how much time will it take for the recovery?
    Reply Soon
    Phone - +917838888685
    Email - avigera@gmail.com

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    1. Hi, Avi,
      Thank you for reading my blog and commenting! I'm not a medical professional, so unfortunately I can't give advice on treatment and recovery for your situation. The best advice I can offer is to find a doctor you trust and thoroughly research your treatment options!
      Wishing you all the best,
      Kristen

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  9. Hei! My name is Christoffer, and i really appriciate this blog. I have OS trigonum in both my feet. Its been very lonely not having anyone to talk to who have been through the same. Ive had it for about 2 years now and i dont see any other opition then surgery. I have a couple of questions. How long did it take for you to be completely recovered and back to activity? You said you were off crutches after 11 days. Was it hard starting to walk again then? I am a powerlifter and a little bit concerned about how long i will be away from training.

    Thank you
    Reply soon

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    1. Hi, Christoffer,
      Thanks for reading and commenting! I'm glad my blog has been helpful to you. I don't recall it being too difficult to start walking again after being on crutches, but of course you have to take it easy at the beginning and really limit the amount of walking you do. I could do some cardio (such as swimming) within a couple weeks of surgery, but to be 100% at my main activity (ballet), it took around six months to fully recover.
      I hope this helps and wish you all the best with your surgery and recovery!
      Kristen

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  10. Hi, did you have endoscopic or arthroscopic surgery?

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    1. Hi Andrew, no, I had a traditional open surgery. My scar is about 2" long.

      Kristen

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  11. Thank you so much for writing all this! I just was diagnosed today with an os trigonun...only in my left ankle. im a scottish highland dancer in my upper 20s so although i dont wear pointe shoes we always are on the ball of our feet or on what we call "half point". I was diagnosed as having a ganglion cyst 3 years ago at a cheap little clinic but evidently it was really my little extra bone. My sports therepist basically thought the other dr was an idiot for his major misdiagnosis. Anyway i had pain start in april this year & in the last 2 weeks it got worse & worse. it now hurts to walk up stairs or do any of the dances...just in time for competition season to start! Ive started reading your blog after searching the internet and getting no where like you said! All i got were Dr sites with Dr coded language and decriptions of surgery that turned my stomach. So relieved to find your blog. im a little less freaked out now. not sure when i will have surgery yet...may try to hold off so i can compete still! But thank you soooo much for taking us through your journey...nice to read about it from a fellow dancers view!

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    1. Hi Melissa,

      Thanks for reading! I'm so glad you commented because, although I don't think I mentioned this on my blog, I was a Highland dancer from the ages of 9 until about 15, when my family moved to an area where there was no instruction available. I still have so many great memories of camps and competitions, and some great friends I made through Highland dance.

      Good luck with your surgery, whenever you decide to have it...it can be tricky to figure out timing, as you said. If you have any questions before or after, don't hesitate to let me know! I'm happy to help however I can.

      Best,
      Kristen

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  12. Hi Kristen! Thank you so much for beginning a blog about your surgery and giving direction to other blogs about the subject as well.
    My name is Lily- I'm an 18 year old dancer from Youngstown, Ohio and recently underwent the os trigonum surgery a little under two weeks ago in my left ankle. I just had a couple questions regarding the recovery process. Aside from Michelle Thompson's posts, I have not read too many personal accounts on recovery, etc from dancers' point of view. I may be a little impatient, but i just would like to know about how long it took you to regain mobility as well as how long it took for the swelling/bruising to go down following the procedure and how long it took you before you were able to get back to class. I just got my splint off about 3 days ago and am still experiencing swelling and bruising, and the incision (almost scar) is extremely stiff. I'm just wondering how long it took for you to walk as well as dance comfotably again and also if you would recommend physical therapy. In about two months I begin a dance program at Ohio University where I will be studying modern dance- needless to say I am itching to get back in the studio and am hoping to be better and dancing before then! I understand everyone's bodies are different and the healing process always varies but i would love to hear about yours if it's not too much! Thank you!

    - Lily

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    1. Hi, Lily,

      Thanks for reading and leaving a comment! It's been so long that I had to go back and read through my blog to find the details you were looking for. I was totally out of ballet class for 8 weeks after surgery, and when I went back, I started with part of barre, then progressed to a full barre and some center exercises, and eventually petit and grand allegro. It probably took me 3+ months to get to petit allegro and 4ish to get through a full class. My swelling did not fully go away until around 6 months out of surgery, and I only did very limited pointe work up until that time because I still had soreness and limited ROM due to swelling. It took awhile, but I did eventually get back to 100% and then some. I've heard that recovery is often easier for modern dancers since pointe isn't a factor.

      As for physical therapy, I absolutely recommend it. It was huge in helping me regain ROM and loosen up the stiffness that sets in with scar tissue. I should update my blog because I'm actually in graduate school now for physical therapy, so I'm biased :), but this experience was a big part of what made me decide to change careers. A real blessing in disguise.

      Wishing you all the best with your recovery and the start of your dance program! If you have any questions, feel free to ask!

      Kristen

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    2. How long before you moved the boot, and how long before you where able to drive

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  13. How long before driving or going back to work. I had the surgery on my right foot. Which is my driving foot. Oh and how many weeks of physical therapy

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    1. Hi, Dana,

      Answering all of your questions/comments in one! I was out of work for a week, and I was cleared to drive once I could take off my boot, about two weeks after surgery. (It was also my right foot, and my husband had to drive me to work a few times.) My blog posts from July 2012 talk about this timeframe in more detail if you'd like to read more about the early stages of recovery.

      As for how long physical therapy lasts, it totally depends on the person and his/her goals. I was discharged from PT five months after surgery, but as a dancer, I was striving for a great deal more range of motion and strength in my ankle than the average person. So, if I weren't trying to get back to dancing, I imagine it would have been much sooner.

      Hope this helps, and all the best in your recovery. Hope you're back to running soon!

      Kristen

      Hope your

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  14. My injury was due to running! I run a lot and while running up hill is when the pain ignited. Waited three years before doing surgery. The pain subsided but would inflamed whenever if felt like. Surgery is over! Can't wait to get back to cardio

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  15. Hi kirsten. Hi dana. My name is Juan I'm from Mexico. Just got diagnosed with os trigonum yesterday I do a lot of stationary bicycle. I almost never run for cardio but this time I was at the beach and opted for running on the second day of doing this and halfway to my run I started to feel the pain on the back of my right ankle. They gave me a walking book. Suggested rest and gave me celebrex for the inflammation. They told me to get back to the dr in 10 days. have you heard of people of curing it without surgery? its really impairing and frustrating... hope you can help.

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  16. I was diagnosed with os trigunum syndrome in February 2015 after about a year just dealing with the pain because med express told me nothing was wrong just water retention. I went to podiatrist and was told I had os trigunum syndrome and that mine had fractured. He put me in boot and I took t5 weeks off work. While I was off work it seemed to be getting better, but as soon as I went back to work and am on my feet for 9 hours a day the pain is back. I believe surgery is want I need but with insurance issues I don't know if that will happen

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  19. Hello, I just wanted to say a huge thank you for this invaluable blog! My daughter also had os trigonum and her story almost mirrors yours. We had to get a third opinion before additional x-rays captured the additonal bone - after the doctor had her go on releve for the x-ray! We tried 18 months of conservative treatment before deciding on surgery. She's also a dancer, ballet and pointe work being her favorite (also loves petite allegro!). My daughter's surgeon told us she could be back in dance class 2 weeks post op and fully back in 6 weeks - basically because she was having surgery done arthroscopically we were told she'd have a lot less down time. Her surgery was early June and it went well, she has 3 small scars - 2 at the front of her foot and one at the back. The surgeon removed the scar and shaved down her talus bone as it was touching a nerve which we didn't realize going into surgery. It's now about 2 months post op and she's no where near ready for dance - she has all the issues you so eloquently described at a similar time frame. We were getting so frustrated at the slow healing process so it's good to know someone who is also a dancer that has experienced a similar recovery and it's obvious we have to be more patient! However, reading your blog, I'm going to see about her doing a modified ballet class - I will ask her PT this week. She is also disappointed not to be able to try out for a pointe role in Nutcracker but after reading your blog, and given a similar timeframe to yours, I can tell we need to be realistic that she's very unlikely to be back on pointe in time for this year's performances. Reading your blog reinforces that recovery takes time and even the surgeon can be way over optimistic with recovery times - everyone's body is different and you have to allow yours to heal in it's own time. My daughter was walking the same day she had surgery, she had a boot for a week only - we thought because she had less invasive surgery she'd be back dancing in no time! This isn't the case, soft tissue takes time to heal and you can't ignore pain - I'd say to anyone going into a similar surgery not to rush things and plan on a long recovery but it's likely your body will tell you this anyway. My daughter is, according to our PT, healing at an expected rate so the fact she can only hold releve for 10 seconds and can't run or jump is quite normal at 2 months post op! Reading your blog has confirmed what our PT has told us and it's wonderful to hear that there is light at the end of the tunnel but patience and small weekly improvements are key! Thank you so much for sharing and good luck!

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    1. oops the surgeon removed the bone - not the scar!

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    2. Hi, Marie,

      Sorry for the delayed response, and thank you for reading! I'm so glad my blog has been helpful to you and your daughter. The healing process can be frustrating, but the end result was well worth it for me. Wishing her all the best as she continues her recovery!

      Kristen

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  20. Hi! Im a13 year old dancer and just had surgery 5 days ago. I have been using a boot and crutches to walk. I started walking the 4th day with crutches and the 5th without. Im not sure if it's such a great idea to be walking without the crutches so soon even though I experience no pain... There's quite a bit of bruising and was wondering if you experienced that much. I haven't been able to dance for 2 months because of the pain and was wanted to know how long it took you to start dancing, even if not nearly as advanced as before the surgery. Any tips or experiences form post-op recovery would be appreciated! Thanks!

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    1. Hi, Sofia,

      Thanks for reading and leaving a comment! As for the walking with crutches, I would follow whatever recommendations your surgeon gives you. I'm not a medical professional (although I am now in school for physical therapy!), so I can't give advice on whether or not you should be walking with crutches right now. Please check with your surgeon about any questions you have.

      As for my experience, I did have a fair amount of bruising after surgery -- check out the post from July 2012 called "Hello, World" for a picture. I did not do any dancing until eight weeks after my surgery. You can check out my posts from September through December 2012 for info on how and when I gradually got back into dancing. I hope this helps! Let me know if you have any other questions, and good luck with your recovery!

      Kristen
      Kristen

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  21. Hi everyone, I am so happy I found this blog! I had os trigonum in both feet which was causing a lot of problems with my dancing. Therefore I had them surgically removed in 2010 in both feet. However I have had some problems with scar tissue in my right foot, namely that when I point my foot seemingly randomly I feel a very tight pinch in the scar tissue that hurts a lot. For this reason I have not been able to take ballet classes anymore and am desperate for a solution. I have been to several physical therapists but no one seems to know what to do. Does anyone else have similar problems or heard similar stories and found a solution? I would be very grateful for your help as I really do want to get back to dance class!

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  23. Hello Laura, there's some really good posts in ballettalkfordancers.com and a couple of dancers posting there had both os trigs removed - I found the site invaluable for their first hand experiences and generosity at giving advice. My daughter had an os trig removed from her left foot and her recovery has been slower than expected - she's currently 3 months post op and not able to point her foot or land on it from jumping. We're trying a different PT than the one we've been using since we've seen little progress - I called up the local professional ballet company to find out who they use for PT and will see if more dance type PT helps - maybe that might work for you too. I have also remained in close contact with our surgeon to update her via email on her slow progress and what treatments we've tried. Maybe you could go back to your surgeon and see what their thoughts are on the pinching - it could be scar tissue or a nerve issue (my daughter has this) - a professional opinion is always good. Also, since it was so long since your surgery an MRI could possibly explain any soft tissue issues but your doctor will be able to advise better on that. Good luck and I hope you get back to dance class soon!

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  24. Hello Laura, there's some really good posts in ballettalkfordancers.com and a couple of dancers posting there had both os trigs removed - I found the site invaluable for their first hand experiences and generosity at giving advice. My daughter had an os trig removed from her left foot and her recovery has been slower than expected - she's currently 3 months post op and not able to point her foot or land on it from jumping. We're trying a different PT than the one we've been using since we've seen little progress - I called up the local professional ballet company to find out who they use for PT and will see if more dance type PT helps - maybe that might work for you too. I have also remained in close contact with our surgeon to update her via email on her slow progress and what treatments we've tried. Maybe you could go back to your surgeon and see what their thoughts are on the pinching - it could be scar tissue or a nerve issue (my daughter has this) - a professional opinion is always good. Also, since it was so long since your surgery an MRI could possibly explain any soft tissue issues but your doctor will be able to advise better on that. Good luck and I hope you get back to dance class soon!

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  25. Hi everyone,
    You may be surprised to know that the sport of Ten Pin Bowling causes complications with the OT bone. I represented my county Semi-professionally for 20 years and have now given it up after surgery last month.
    It took a while to diagnose but it should have made sense, sliding over and over again with toes outstretched with a 16 pound bowling ball in my hand. Just spreading the word about the link between OT and bowling, not just ballet.

    A get well soon to you all.

    Mark

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    1. Thanks for commenting, Mark! I wasn't aware of the connection between OT and bowling, but given your description, it absolutely makes sense that it could cause issues. Thanks for bringing light to this.

      I hope your recovery goes well and that you can return to your sport in the future!

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  26. hello everyone, I'm a semi professional soccer player, 15 years old, and i just had an os trigonum surgery 3 months ago. The rehab process is going great, but i'm wondering about for how long will it keep hurting, and about how long does the rehab take precisely. Doctors have told me but it is always better to see an opinion from somebody that had this experience. I had it on november 23, and according to the doctor i would be playing at around april-may, but my countris national team starts practicing for the u-17 world cup in march, so im wondering if it could be okay to push the rehab process or begin earlier?

    I hope all of you get better soon and can get back to your activities.

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    1. Hi Marcos, thanks for reading! Unfortunately, I can't say how long your rehab will last or when you can start playing - your doctor and other healthcare professionals will have to make that call. Best of luck!

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  27. Hi there, I am going in for surgery in a week and I am really nervous. Im a big wimp when it comes to needles and things, so I wanted to know if you could tell me what to expect. Does the IV hurt at all and how long does it take to put you to sleep? Once I'm out I'll be fine haha! I also read something online about a big nerve block thats injected into the back of the knee? Would I be awake for that? Sorry for all the questions! I'm a nervous wreck!

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    1. Hey Emily, sorry for the delay. I hope I'm not too late to answer your question! Surgical nurses are used to people being nervous, so just let them know and they should reassure you and answer any questions you have. My nurses were awesome and so sweet. First, when I was in a little holding room before going into the OR, they gave me a saline IV just for fluids. It didn't hurt much - just a little prick. Just look away if you get nervous or woozy about needles! Then, once I was in the OR, they used the same IV for the medication that put me to sleep (so they didn't have to stick me again). I went to sleep super quickly - less than a minute for sure. The nerve block was done after that, so I was asleep during it. Your experience might not be exactly the same, but I would just ask the nurses any questions you have, and they'll explain anything! You are definitely not alone in being nervous. Good luck!

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  28. Thank you so much! I got your reply this morning which was comforting before heading to the hospital! I'm home now (yay) and everything went well! May I ask how long it took for you to get back to ballet class? I'm also a dancer and this was such inconvenient timing as I was hoping to land a job in the fall. My doc told me I would be back to fully dancing in 6-8 weeks, but I've heard for a lot of people it's taken several months....thanks again!!!

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    1. Emily, I'm glad everything went well! I hope the experience was as stress-free as possible. :) I have a few blog posts from September-December 2012 about my return to dance. Those will hopefully be helpful to you, but in a nutshell: I started back to ballet eight weeks after my surgery; my surgeon had initially said six weeks, but my PT (a former professional ballet dancer) did not feel I was ready at that time. I started back slowly with just barre and a few center exercises. It took six months for swelling to totally go away and for me to feel comfortable on pointe again. I hope that isn't too disheartening; recovery can be a long process. That was just my experience, though. My best advice is to find a good PT experienced in working with dancers who can guide you through recovery! Good luck!

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  30. Hi Kristen, thank you for creating this blog, it's been very reassuring to read your experience and been able to relate to someone. Just one question, am 4 weeks out from having open OS trigonum surgery and am wondering from your experience if you ever felt mild waves of pain from time to time in your ankel? Would this be due to swelling? I know its still quite early post op. Thanks again, jack

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    1. Hi Jack, glad you are on the mend! Yes, I definitely still had pain four weeks out, especially when I did a lot of activity (even just walking). I think that is completely expected, but if you are ever not sure about anything, I would check with your surgeon! Mine had a PA who was super helpful with questions like that. I'm always glad to answer questions, but I can really only speak to my experience since I'm not a medical professional. :)

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  31. Thanks very much for responding, hopefully the pain will ease up in the next few months :)

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  32. Just one other thing Kristen regarding scar tissue, have you recovered fully in tightness and ROM? and do you have any tips on losing the scar tissue? Thanks :)

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    1. Hi Jack,
      I actually ended up with more ROM in my "bad" ankle than my good one! Are you going to physical therapy? The manual therapy techniques a PT can do can help a lot with ROM.
      Kristen

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  33. Hello! I was here a few years back when this surgery was done on my left ankle, but I now must do the same on my right ankle, unfortunately. I was wondering how long after surgery you were able to drive again?

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  34. Hi again! So it has been about 9.5 weeks post-op, and I am dancing en pointe and jumping. I participate in all of class but I still feel pain in my Achilles area and also in the front of my ankle near that bone on the outside (just above the incision). I ice it every night but there is still a lot of swelling. I am going away for 8 weeks to summer programs and I am just praying that I will not be struggling too much as I am trying to get a contract this year. I also have seen a slight improvement in ROM, but not as much as I would like. Do you think this will improve with time? Any exercises that you felt helped this? Thanks so much!!

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    1. Hey Emily, sorry for the delay in response! Are you at your summer program by now? I hope things are going well. The swelling took ages to totally disappear for me - probably 6 months. But you are way ahead of where I was at 9.5 weeks, so hopefully you'll continue on a speedy road to recovery. Are you in physical therapy? A PT can help you regain ankle ROM with exercises and manual therapy. It should improve with time as the swelling continues to decrease, but it also takes work! Let me know if you'd like any more specific suggestions, and thanks for reading!

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  35. Yes I am at my summer course! It is feeling better and better and I haven't struggled to much. There is still swelling and a bit of straining, but my plié has increased a lot! I was seeing a physical therapist who helped me but I don't have one here. I theraband (pointing, inverting, and winging) but my foot still isn't where I want it to be. If there are any specific exercises that you think helped your ROM improve let me know :) thanks for your response!!

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  36. Hi Kristen - did you do both feet at the same time?? I have it in both feet and curious if anyone did the (dual) surgery at the same time.

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    1. Hi! I only had surgery on my right foot because that's the only one I had symptoms in. I don't know if I have it in my other foot or not because I've never had it x-rayed. It would be pretty tough to do both feet at once in terms of your mobility after surgery, but I'm sure it's been done! Good luck!

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  37. Hi, I'm a 13 year old girl and I do both ballet and soccer. I have just found out that I have os trigonum too. Just a quick question, after the surgery how long did it take for you to get back into your sport? Thank you so much.

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  38. I'm a lifelong dancer and, until 1.5 yrs. ago, was a salsa dancer/addict in my non-working hours. I've been misdiagnosed several times since the pain started. During the process, I've worn insoles, an air cast, a cloth brace and have ceased activity, but nothing has helped. I also had physical therapy. I was just diagnosed correctly with os trigonum. Does it sound like I've exhausted my available options? What type of surgery did you have done?

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  39. I'm a 14 year old dancer who used to have os trigonum syndrome in my right ankle. When I was first diagnosed with os trigonum syndrome, I did physical therapy for a few months and it helped a bit. But it still bothered me a lot at dance and it was limiting my abilities. So we scheduled a surgery in July for the bone to be removed a little after one of my dance recitals. For the surgery I was asleep and woke up with the annoying little bone out! I was on crutches for about the next 4 weeks and then worked my way into walking with only a boot. Almost 6 weeks after the surgery, I could walk without anything, to and from my classes at school. This is also when I started to do some physical therapy. At this point I was doing basic things at dance but no jumping, leaping, and especially pointe! I was cleared to be fully back to dance exactly 3 months after the surgery. My ankle still wasn't feeling 100% awesome though. I still do home physical therapy every day, but my ankle continues to hurt, this time when I plié. My scar is a little excessively red too. I hope to seek out information about what to do next and a long term goal for me is to get back en pointe next summer!

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  40. Replies
    1. I am not posting new entries because I am now 5+ years out from surgery and doing well, but I do respond to comments/questions.

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  41. Hi there, I am a mom of a 14-year-old girl who is scheduled for this surgery on August 9. Oddly she is not a dancer, but plays softball and volleyball. We went to two different surgeons and got two very different options for surgery. The first wants her completely immobilized for a full month, nonweightbearing, after surgery. And then rehab. The other wants her to begin moving it and weight-bearing almost immediately, as soon as the incision is healed and she is able. What was your experience compared to these two? I believe we are opting for the more aggressive one, because she'd like to be back to playing sports sooner rather than later.

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    1. So it turns out I'm still subscribed to this blog from when I posted a question on it years ago, so I figured I would reply to this question seeing as I've been through both options. Hope I'm not stepping on any toes by doing so!

      The first time I had this surgery, I immobilized and had no weight bearing for one to two months. This surgery was likely four or so years ago, and from time to time, I still have pain and issues with said surgery location.

      On my other ankle, I had the same exact surgery, but was starting weight bearing again within a week of surgery. This ankle recovered significantly better. Despite being only a year post op, this ankle is all but fully recovered and I have little to no pain in it as a result of my surgery.

      While every person is different and I'm sure there are plenty of ways to go about this recovery well, in my personal experience, the more aggressive approach both recovered more quickly and was better in the long term.

      Hope your surgery goes well and best of luck!

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    2. Thank you very much for the reply! I never expected to hear from someone who actually had both options!
      My gut has been telling me to go with the more aggressive recovery, as my daughter is young & very athletic. Thanks!

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    3. Hi! I'm glad you two found each other- thank you both for reading, and thanks for sharing your experience, Elizabeth! pblarr, my experience was much more similar to Elizabeth's second surgery than her first. I looked back at my old posts to find the details. :) I was only non-weight-bearing for a couple days post-op before my surgeon had me start putting some weight on my foot (with crutches and a boot). I used two crutches for around a week, then one crutch for a few more days, then nothing. I was initially told I'd be in a boot for 4 weeks, but my surgeon ended up having me wean out of the boot and into a lace-up brace around 2 weeks post-op. I wore the brace for around 4 weeks after that, so for 6 weeks after surgery. So I would say my surgeon was on the more aggressive side, and my outcome from surgery (and PT- that is very important, too!) was excellent. Hope this helps, and good luck to your daughter! Let me know if you have any other questions. :)

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    4. Thank you Kristen!! We're hoping for success - I may write again post-op!
      How painful was it after? Just not sure what to expect for my daughter.

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    5. The pain was honestly not as bad as I expected. I was issued a Cryo-Cuff after surgery and I think it helped a ton. My post-op instructions on that were pretty rigorous- to keep my foot elevated and drain and refill the "boot" part of the cuff every 20 minutes to keep the water really cold. I did have a prescription pain med (Norco, I think), but I only took it for a couple of days then switched to Aleve because the adverse GI reactions hit me really hard!

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  43. The days following my surgery weren't to bad as long as I was on medication. A couple times a day, my ankle would start hurting, but all I could really do was clench my teeth and wait until it stopped. But other than that, it was not too painful.

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  44. Hi Kristen,

    I am about 2 weeks post op. My pain is not to bad but I still have a ton of numbness and burning sensation in my foot. Especially my toes. This is honestly what is bugging me the most. Did you have any numbness, tingling, burning? That lasted this long?

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    1. Hi Parker! I don't remember any numbness or burning after my surgery, but it's been awhile (almost 6 years)! However, a change in sensation after surgery is pretty common due to inflammation in the area, and usually temporary. You can always ask your surgeon or PT if it persists and you're concerned. Good luck with your recovery!

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  45. Hi!
    I'm really torn between living with the pain and actually take the surgery. It feels so scary, and as you wrote in your first post; it's so so hard to find information, especially about the rehab process.

    I'm really mobile in my job and walk aprox. 15-20k steps every day. When were you able to walk around that much? I want to be able to get back to work as soon as possible.

    Thankful for any replies!!

    xx

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  46. Hi Kristen,
    I’m actually really happy to have found a person who has experienced this injury other than me. I’m a 17 yr old athlete (mostly soccer) who because of all the pointing of the toe down to kick the ball suffered from os trigonum syndrome about a yr and a half ago. I didn’t want to take the risk of surgery so I got a steroid injection in my ankle which mostly solved the issue but I lost a lot of flexibility in the ankle and it sucks. I’ve been stretching it a lot/working it out but even all this time later I can’t rly get that flexibility back. I was wondering if you had the same issue and if u had a solution.

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  48. Hello there....I too have been diagnosed with OS. I sprained my ankle in January and since then when a step down or walk a horrible pain shoots on the back of my heel or the side of my ankle between the ankle and Achilles. I then have to pause and wait and can walk again. Did this happen to you? I'm so so tired of a month of walking boot.....Just wondering what your symptoms of pain were before surgery.

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  49. Please if anyone has had the same pain pre-surgery......let me know. I am also at a loss to have OPEN surgery or the Laparoscopic. Thanks!!
    Sherri

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  50. Hi My name is Ian I'm not a dancer or a sports person. I work in the kitchen of a restaurant and I had an x-ray on my ankle and the person showed me that I have OS Trigonum.

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    1. I have had the same issue from working in a restaurant as a manager. I was told not being on my foot as much could heal it. I stepped down from my position and almost a year later it's not better. I'm afraid I'm going to need the surgery. I'm so scared. Have you got the surgery? Maybe we can be in contact by email? Please reach out steffywill322@gmail.com

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  51. hi
    my wife is 29 year old and she had the same surgery in her childhood and after few weeks she get good recovery and she was able to walk properly, she is not having any pain but now her walk is little bit weird( kind of habit) she is not use to for giving her body weight on the same leg that is why her walks looking weird. please let me know if there any way to improve this habit.

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  53. I know this is suuuper old style this point but hey! I’m an 18 y/o level 8 gymnast and I found out recently that my ankle pain was from an os trigonum!

    I had a bad ankle sprain over a year ago that sparked all this and just a couple weeks back now I went to the doctor for it after a chiropractor made it worse and she put me on anti inflammatory medication. It’s worked well for the past two weeks, cutting down the pain by around 50%! But now tonight it was way worse again, maybe around 20-30% effective. Im thinking I’m not too far off from being out in a boot.

    My question here is: did you try a boot before surgery? If you did, how long did you have to be in it and what restrictions did you have? If I’m in a boot I’m hoping to still go to practice, maybe just mostly stick to bars. And any advice on when surgery is a good option and if a boot is a good option at all?

    Thank you for your time!
    -Micah

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